Last Thursday I got a weird call from my mom during the day (she never calls me when I’m at work). It was her giving me a heads up that she called the paramedics and was heading to the hospital.
Evidently she had another Parkinson’s episode where she couldn’t really make her legs work/move and couldn’t get up and about. This same thing happened a little over a year ago (maybe 15 months?) and it’s called frozen leg syndrome or something. When it happened before, they adjusted her medication dosage which seemed to improve things. Until now.
She went to the emergency room and was there basically all day. After a lot of tests, they did basically conclude that it was another episode related to the Parkinsons. So they did send her home eventually once a home health aide was arranged to spend the night to make sure she would be ok.
Thank goodness she had friends who could be with her and help her out!
I went down on Friday and was there all weekend. She was getting around ok- although she was pretty fatigued still after her Thursday adventure. She was also mentally fatigued still too, which happens when she’s tired. Saturday morning she was still sluggish, but doing better. Sunday she seemed about where she’s been- mobility wise and mentally.
The docs did up her meds, and I worked to get her on a good schedule for taking them. I even set daily alarms on her Alexa to go off when she needs to take them throughout the day. She seems pretty focused on making sure she takes them all too.
My biggest concern is that I’m starting to notice more of a mental decline, which really worries me. She struggles to find words and names more, and sometimes she just says the wrong thing- like an old movie came on and she said it was Popeye, and it was Tarzan. There also seems to be a slight uptick in confusion. She also had some issues with her TV sound bar and her iPhone which got her very frustrated.
Part of me wonders if she forgot to take some of her Parkinson’s meds and that caused the issue. Information does mention that disruption in medication can cause the freezing and inability to move, etc. I can’t know for sure at this point. It may just be time to up her dosage.
I’m trying to keep her doing crosswords and wordle and other thinking games to keep her brain sharpened. And she still reads a lot. I check in with her daily, but I worry.
I’m also struggling with not being resentful, especially when I visit and become a non-stop servant. I’m kind of up and down constantly, adjusting pillows, getting things for her, dressing/cleaning, cooking meals, etc. Most of the requests just come like “I need you to fix my pillows” or “I’ll take a snack now.”
I know she’s scared and frustrated by her failing body, and she’s uncomfortable and still in joint pain from surgeries, so I’m trying to approach all this with as much grace as I can muster. It’s just hard not to get short when she’s kind of ordering me around.
And when I do get short, I feel incredibly guilty. Like I do right now typing this.
Anyway- it’s a lot and it’s frustrating that I’m 3.5 hours away and can’t help her more. And I have this low level anxiety every day. It’s just kind of draining, so I’m bitching. I’ll stop now.