I was down visiting mom this past weekend- it was ok, although I worry about her.
When she gets enough sleep, she’s present and moves decently, and seems “with it”. But if she doesn’t, then she seems really off. Very unfocused. More difficulty moving. Things like that. And she hadn’t been sleeping well for a few nights before I came down.
She woke up at 3 am on Sunday morning and called for me to help get her up. She wasn’t comfortable in her chair and needed repositioning, etc. she couldn’t tell me really what she needed me to do- just that she needed help getting up. Which she didn’t because she was able to get the lift chair up and then out of it. And was able to walk around.
Eventually I talked her into trying her bed. She can’t use her bed on her own because she doesn’t have the strength really to scoot herself in and out of it. I got her comfortable, and thankfully she slept until about 8:30 am. And she seemed much more “with it” on Sunday.
She also said some disturbing things like “maybe I should just quit my antidepressants”. Which we had a chat about, especially since you can’t just stop taking them without repercussions. Part of me wonders if she already stopped taking them and that’s part of the issue.
Also- she mentioned having funny dreams where she thought I was in the house when I wasn’t. Like she was calling out to me to help her and then eventually realized I wasn’t there.
I’m worried as hallucinations can be part of parkinsons. Although they could just be vivid dreams resulting from medications and her poor sleep… I don’t know. I’m trying to work on getting her a hospital type bed where she can fully adjust it so she can get in and out and also get comfortable Foe sleep. But it’s a bit of a mess trying ton figure out her insurance and what might be covered, etc.
I am noticing other slight declines. She gets fatigued more readily (because she doesn’t exercise) and she searches for words more now. Like she’s struggling to remember actors or movies or names of things. Not all the time, but enough that it’s noticeable.
She has her 60th class reunion coming up this weekend and she has some of her oldest friends coming. She’s desperate to go, so much of this weekend was prepping the house for visitors and getting her clothes ready, etc. I really hope she’s able- even though I know she’ll be so tired. I also know it’ll be her last one- so I want her to have this.
Watching a parent in slow decline really sucks.